Today is a very special post about a fellow blogger that I found through Netmums. She is just 15, is called Alice Pyne and has been in a brave 4 year battle with Hodgkin's lymphoma. Alice has created a bucket list of things she'd really like to do (the lymphoma is being very naughty right now and won't go away) and so I'd urge all of you to have a visit her blog and see if there's anything you can do to help, do you know anyone who could help with her wishes?
The one thing on her list I spotted that I can help with is spreading the word about the Bone Marrow register, which I joined 11 years ago. Things have moved on medically so here's a couple of facts from the Anthony Nolan Website page that might make you think again if it's something that you've not previously considered.
http://www.telegraph.co.uk/technology/twitter/8565214/Teenagers-bucket-list-trends-worldwide-after-celebrity-support.html
In addition here is her official facebook page - some horrible people have been setting up and using other ones which is upsetting Alice so I think it's important that the real one is posted for her.
The one thing on her list I spotted that I can help with is spreading the word about the Bone Marrow register, which I joined 11 years ago. Things have moved on medically so here's a couple of facts from the Anthony Nolan Website page that might make you think again if it's something that you've not previously considered.
- Bone marrow donation can also be done through a vein in your arm which is non-surgical, known as a Peripheral Blood Stem Cell donation as well as the original method which was surgery.
- It's not just family that can be a match, 70% of people who need a transplant have to rely on the kindness of a stranger to save their life
- People who have donated via the bone marrow method compared the after-effects to a hard game of football. Many donors find the experience fulfilling and for some, it’s life-changing
Alice has links on her left sidebar to the associations but I've posted them below also.
I don't use Twitter (I know I'm so behind the times) but the article in the Telegraph said she uses the hashtag #alicebucketlist so for those who do use it you could always tweet there too! Here's the telegraph article:
http://www.telegraph.co.uk/technology/twitter/8565214/Teenagers-bucket-list-trends-worldwide-after-celebrity-support.html
In addition here is her official facebook page - some horrible people have been setting up and using other ones which is upsetting Alice so I think it's important that the real one is posted for her.
So.... a non crafting post for today but one that I feel is really important nonetheless and so wanted to help in whatever way I could.
Keri
I found your blog through brit mum bloggers,I'm going to nip over to Alice Payne's blog ,she sounds like a very courageous girl,lovely blog , I too am a crafty mum ,It helps keep me sane lol x
ReplyDeleteHi Amanda, thanks for popping over to say Hi. Hopefully I'll be back blogging regularly soon, it always seems to be hard to do anything other than sew when it's craft fair time!
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